The IBC map is a personal project of Terry Arnold. I started this map is a visual aide to show “rare does not mean never.” This map has gotten the attention of media but also researchers and has been used as a reference in published papers on the need to launch more studies.
If you have been diagnosed with IBC and are interested in the being on the map, please follow this link to fill out form. Just as an fyi, I will not add anyone without their permission and none of the information supporting the map is ever shared. I hope you will help me by allowing yourself to added to this visual aide, which is now fueling more research study.