/Patient Resources

“Let’s Raise a Racket!”

By | August 14th, 2016|

Pecan Grove Plantation Tennis Club is hosting a tournament to benefit the IBC Network Foundation. [...]

31 Days of October

By | June 27th, 2016|

Update! Due to popular demand, this will be an annual event!  Join us!  The IBC [...]

Dr. Google can save lives, but also can get it wrong.

By | June 3rd, 2016|

Some poor information regarding Inflammatory Breast Cancer. Please see update June 18, 2016 [...]

Inflammatory Breast Cancer and Social Security

By | May 27th, 2016|

Inflammatory breast cancer patients are covered by Social Security benefits to help manage the financial [...]

Pinktober – My Journey With IBC

By | May 27th, 2016|

*This article was written by Ashleigh Royalty Range on Tuesday, November 4, 2014. [...]

The MBC Project

By | May 22nd, 2016|

The IBC Network Foundation honored to be a partner with the Metastatic Breast Cancer Project. The [...]

The person I can never thank

By | May 18th, 2016|

I feel like I owe my life to an ordinary woman I never met. She [...]

I Get To Have Another Another Birthday!

By | May 6th, 2016|

I have shared many times, eight actually about my joy over getting to have a [...]


By | April 27th, 2016|

I watched Karen as she reached into her handbag and pulled out a deep red [...]

The Inflammatory Breast Cancer Guide

By | February 8th, 2016|

1. Download the infographic to your computer by clicking this link: The Inflammatory Breast Cancer [...]

Giving Tuesday December 1, 2015

By | November 24th, 2015|

For the last few years the movement called  #GivingTuesday has challenged individuals and communities to [...]

Book Review – Nowhere Hair, Written By Sue Glader

By | November 23rd, 2015|

We have received a book review from Christin Boisse, a mom of three who is [...]

ICD Code? We Don’t Have One & We Need One!

By | November 19th, 2015|

IBC Sisters, I need your help. Several of us in the IBC community have formed [...]

Happy Dancing

By | October 28th, 2015|

Happy dancing, a term used between IBC sisters for a good day or series [...]

IBC Treatment Flow Chart

By | September 7th, 2015|

The MD Anderson Invasive Breast Cancer Treatment Algorithm has been updated to include inflammatory breast [...]


By | July 30th, 2015|

This post was inspired by the passing of Kate's friend Rachel, who was taken by [...]

A Guide On Peer-To-Peer Donations

By | July 28th, 2015|

There are some popular 3rd party platforms online, making it fast and easy to raise [...]

The Choice

By | May 18th, 2015|

I may be a slow learner. It occurred to me yesterday that in spite of [...]

Moms & Daughters

By | July 23rd, 2014|

I will never forget the feeling. It was the tiniest mark on her forehead. I [...]

Little Pink Houses

By | May 20th, 2014|

Jeanine Patten-Coble, the President of Little Pink Houses. We wanted to share something [...]

Morgan Welch

By | May 18th, 2014|

Morgan Today, May 18, marks a birthday that is special to me. My [...]

Growing Up and Being Real

By | April 15th, 2014|

Anything can happen, in one day. What a difference a day can make. [...]

A Camp for Kids who’s Parents Have Cancer

By | April 11th, 2014|

Camp for Kids   Kids whose parents have cancer can often deal with emotional, developmental, social and academic [...]

Response to Pancreatic Cancer Action’s New Advertising Campaign

By | February 5th, 2014|

Pancreatic Cancer Action has launched a new advertising campaign this week including the tagline "I [...]

Vitamins and Supplements Chart

By | January 3rd, 2014|

We get questions about vitamins and supplements and we strongly caution you to discuss this [...]

It’s A Cancer Thing!

By | January 1st, 2014|

Holiday gatherings can sometimes be difficult when you are ill, but not looking ill, it [...]

The Unselfie

By | December 3rd, 2013|

the classic unselfie shot! tweet yours to @talkibc The Selfie – You know [...]

Suites of Hope: Condo for Cancer Patients

By | November 25th, 2013|

Every so often, we get the pleasure of hearing a truly moving story of someone [...]

Hold the Pink, Take Out Breast Cancer

By | October 30th, 2013|

Kathleen K. Strosser has been living with Stage IV Inflammatory Breast Cancer since April, 2009. [...]

Think Before You Pink

By | September 25th, 2013|

I was walking, practically jogging though my local grocery store at 6 pm on a [...]

Cancer Progress Report 13

By | September 18th, 2013|

Kim Alexander shares her story in the American Association of Cancer Research (AACR) Cancer Progress [...]

Pink Story Season is Just Around the Corner!

By | September 7th, 2013|

Pink story season can be brief, we need to be ready to have the [...]

Book Review for Jennifer Arnold Smith’s What You Might Not Know: My Life as a Stage IV Cancer Patient

By | September 5th, 2013|

Book Review for Jennifer Arnold Smith’s What You Might Not Know: My Life as a [...]

A Strength Within…Prayers for Heather Ryan

By | September 4th, 2013|

The Ryan Family Updated February 17, 2014 ... The IBC world has suffered [...]

Inflammatory Breast Cancer: What We Know and What We Need to Learn

By | September 3rd, 2013|

Simply titled, Inflammatory Breast Cancer: What We Know and What We Need to Learn, is [...]

How To Find Resources in Your Own Community If You Have Cancer

By | September 3rd, 2013|

This picture was shared with us by Jessica. She called it "Family is Everything". [...]

Meet Miss Nixon

By | September 2nd, 2013|

Amanda, age 35, doing well and sharing hope with all.   Amanda Nixon [...]

Spotlight on Holly Hamilton-Inspired

By | August 30th, 2013|

We would like to introduce to you our friend Holly.  Inspired by her dear friend, [...]

Day #16 Cotton Candy

By | August 15th, 2013|

Cotton candy: Usually this sweet treat means you're at an amusement park, with roller coasters [...]

Linda Bell, 57, diagnosed with Inflammatory Breast Cancer

By | August 12th, 2013|

April 25, 2012 FOX 25/MyFoxBoston.com - Linda Bell, 57, was diagnosed with Inflammatory Breast Cancer July [...]

Diagnosing Inflammatory Breast Cancer can be Difficult

By | August 11th, 2013|

Diagnosing Inflammatory Breast Cancer can be difficult since the cancer is not apparent on ultrasounds, [...]

What is the best way? An inspiring story.

By | August 1st, 2013|

The opening line of the article just pierced my heart. "What’s the best way to [...]

PROMISE magazine is talking about The IBC Network Foundation!

By | August 1st, 2013|

Promise is published three times a year by The University of Texas MD Anderson [...]

UK power!

By | July 30th, 2013|

I could just cry I am so moved... Recently some of the IBC sisters in [...]

How you can help us!

By | July 11th, 2013|

Are you a To-Do List person?  Personally I am more of a “long term goal, [...]

Jacquelyn & the Grand Reveal

By | July 11th, 2013|

Reading over Jacquelyn's story... this line jumped out at me. "Chemotherapy for me was a [...]

Deborah – Being diagnosed with Inflammatory Breast Cancer

By | June 27th, 2013|

Debra, was dx with IBC, July 24, 2009 and is NED. My name [...]

Tess, Logo, & Breaking the Silence

By | June 21st, 2013|

Someone asked me why our logo is a puff, and not a ribbon.  I realized [...]

Holly-Celebrating Life & Love

By | June 21st, 2013|

Diagnosed on September 27, 2007 at the young age of 34, I thought life, as [...]

Me & Fran Drescher

By | June 20th, 2013|

I am not one who cares a lick about celebrities.  Not owning a TV most [...]

Yup, pretty much sums up my first doctor appointment

By | June 14th, 2013|

Honestly, this comic could have been scripted about my first appointment for my swollen breast.  [...]

Trying to feel “normal”

By | June 14th, 2013|

“The Silence is Killing Me” – Inflammatory Breast Cancer Online Education and Advocacy Efforts to Bridge Patients and Researchers

By | June 12th, 2013|

  About 10,000 people attend the SABBC yearly. We have submitted an abstract [...]

Hope & Thanks

By | June 9th, 2013|

Darlene and her daughter Lynn at a cancer event. We wanted to share [...]

Too Young for Cancer? Breast Cancer in Young Mothers

By | June 5th, 2013|

Sandra Bishnoiphoto credit-Shaunak Mukherjee Updated 1/10/14 - A Personal Message from Sandra The [...]

MD Anderson’s Cancer Survivor Week, June 1-8, 2013

By | June 2nd, 2013|

The week of June 1-8, MD Anderson is hosting a cancer survivor week.  Are any [...]

Congratulations to Dr. Wendy Woodward!

By | May 31st, 2013|

Dr Wendy Woodward We are delighted to share that a first ever Inflammatory [...]

How Some Women Feel after a Cancer dx

By | May 31st, 2013|

Terry Arnold

By | May 31st, 2013|

Terry and husband Calvin at Niagara Falls. Terry Arnold was diagnosed with IBC [...]

Doing What It Takes

By | May 22nd, 2013|

The treatment for brain mets can include whole brain radiation. Two of my [...]

Clinical Trial – We will do this again!

By | May 14th, 2013|

Thank you letter from Dr. DePinho, President of MD Anderson We wanted you [...]

My Wish

By | May 6th, 2013|

"Innocence" by Kent Arneson. Engrossed in an article I was writing, I looked [...]

IBC Webinar held at MD Anderson

By | May 1st, 2013|

from left to right, Dr. Ueno, me, Danielle Walsh, IBC program admin, Dr. Woodward, [...]

Inflammatory Breast Cancer Course

By | April 30th, 2013|

Course Overview Inflammatory breast cancer is a rare but aggressive form of breast cancer. Although [...]

For our Sisters in the US

By | April 29th, 2013|

 INFLAMMATORY BREAST CANCER - SUPPORT AND NETWORKING - a chance to get to know one [...]

For our UK Sisters diagnosed with IBC

By | April 29th, 2013|

A friends and family group! With the focus on the women fighting IBC, we also [...]

IBC Sisters at the Brambleton Ribbon Run

By | April 13th, 2013|

Brambleton Ribbon Run – April 13, 2013 A couple of months ago Terry Arnold posted [...]

The Real Deal – Sheryl and Nick

By | April 3rd, 2013|

Sheryl, and NIck, living with IBC for ten years. The up close and [...]

Cancer, The Glass Ceiling, & Gail.

By | March 31st, 2013|

Dr. Ueno, Gail & Terry Arnold In honor of TNBC day, I remember [...]

Order Please! The crucial difference that getting IBC treatments in order makes.

By | March 21st, 2013|

Tiny vent warning.... A few weeks ago I placed a shorter version of this post [...]

F.D.A. Approves a New Drug for Advanced Breast Cancer

By | February 21st, 2013|

Kadcyla but was known as T-DM1 is called the "New Herceptin" giving hope to [...]

Inflammatory Breast Cancer: What You Should Know

By | February 8th, 2013|

From Medscape News: Inflammatory breast cancer (IBC) accounts for 1%-5% of all breast cancer cases [...]

World Cancer Day – Myths about Cancer Day

By | February 7th, 2013|

  Reesa didn't believe the myths and asked questions. A pro active. warrior! [...]

Lori Grennan Passes Away

By | January 22nd, 2013|

  "The IBC world suffered a great loss today. Lori Grennan, the inspiration for much [...]

Let’s Enter the Ponder Zone Here for a Minute

By | January 7th, 2013|

Let's enter the ponder zone here for a minute. Two ladies this week have entered [...]

International IBC Conference

By | November 30th, 2012|

Third International Inflammatory Breast Cancer Conference - December 1st and 2nd, 2012 About 10,000 [...]

Breast Cancer Follow-Up and Management After Primary Treatment

By | November 19th, 2012|

 Society of Clinical Oncology Clinical Practice Guideline Update Dr. Robert S. Miller of Breast Cancer [...]

Lost in a Sea of Pink?

By | November 11th, 2012|

Our hope is placed in our friends helping to educate about IBC. We are lost [...]

Articles for Free at PubMed Central

By | October 29th, 2012|

Wanting to read scientific research articles, without paying fees?  PubMed Central has a  free-of-charge service [...]

IBC Caregiver Support – Facebook

By | October 27th, 2012|

With the focus on the women fighting IBC - Inflammatory breast cancer, we also need [...]

IBC Men’s Support Group – Facebook

By | October 27th, 2012|

IBC Inflammatory Men's Support Group With the focus on the women, we also [...]

Beyond the Shock of Breast Cancer (Video)

By | October 26th, 2012|

The IBC Network Foundation would like to thank Beyond The Shock for allowing us to [...]

Ohio Woman Diagnosed With Breast Cancer ‘Hunts for Hope’

By | October 17th, 2012|

DELAWARE--With the little time she has left, a central Ohio woman diagnosed with inflammatory breast [...]

Inflammatory Breast Cancer’s Rare Lethal

By | October 16th, 2012|

8:36AM EDT October 16. 2012 - No one knew what to make of Terry Arnold's [...]

Westerville Native Fights To Help Others Beat Rare Breast Cancer (Video)

By | October 14th, 2012|

2nd Annual Hunt For Hope Raises $42,000 DELAWARE COUNTY, Ohio -- A Westerville native is [...]

The Power of One

By | October 11th, 2012|

If you are new to the IBC Network, you might not be familiar with Lori [...]

Italian? No problem! Sept 25,2012

By | September 25th, 2012|

Angela in Rome. Taking IBC to the Streets! We love hearing from you [...]

The Other Side of the Ribbon

By | September 24th, 2012|

The other side of the ribbon... On this date, five years ago, I [...]

TNIBC Reacts to Moon Shots Program(Video)

By | September 24th, 2012|

At the Moon Shots press conference the film crew asked for comments. Please share. It [...]

Midland TX IBC Patient Speaks Out

By | September 23rd, 2012|

Inflammatory Breast Cancer Puff MIDLAND- We hear about breast cancer and other adult cancers but [...]

Terry’s IBC Map

By | September 17th, 2012|

IBC Education and Outreach Workshop

By | September 12th, 2012|

Mark your calendar, Oct 5th! The Morgan Welch Inflammatory Breast Cancer Research Program and Clinic [...]

IBC Map of the World

By | September 12th, 2012|

The IBC map is a personal project of Terry Arnold. We hope you view, share [...]

Be there for someone with Cancer

By | September 2nd, 2012|

  Do you know someone fighting or fresh out of the cancer battle? Give them [...]

Frequently Asked Questions (FAQs)

By | August 29th, 2012|

About the Disease [qa cat="About the Disease"] Doctors and Specialists [qa cat="Doctors and Specialists"] Support [...]

Touched by Cancer?

By | August 27th, 2012|

"Touched by cancer"? Personally I really hate that phase....more like slapped by cancer is how [...]

“Touched by Cancer”

By | August 27th, 2012|

Trinia Campbell, not long prior to her passing at age 43. "Touched by [...]

The Bride Who Wore a Mask

By | August 26th, 2012|

UPDATE: Casey Edwards passed away Monday afternoon, February 18, 2013 after a three year battle [...]

Inflammatory Breast Cancer 101

By | August 26th, 2012|

This is a radio interview of Naoto T Ueno, MD, PhD by Terry Arnold. Dr. [...]

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