Grant Application Information 2018

By | November 30th, 2017|

When the IBC Network Foundation first formed in 2011, we wanted to create a very [...]

Congratulations Team IBC Wranglers!

By | November 9th, 2017|

Congratulations Team IBC Wranglers! Such exciting news!  The Team IBC Wranglers, the number one team [...]

2018 Meet ups!

By | November 6th, 2017|

IBC Meet up! Rare?  We don’t think so.  We are real women living [...]

First Annual Lindsay Thul Memorial Golf Outing

By | November 6th, 2017|

First Annual Lindsay Thul Memorial Golf Outing We would like [...]

Open Letter to all who supported 2017 Ohio Hunt for Hope

By | November 5th, 2017|

Dear 2017 Hunt for Hope Ohio [...]

Kiwana Thomas Gayden shares about her diagnosis with TN IBC

By | October 28th, 2017|

In November 2015 after a training run for an [...]

National Inflammatory Breast Cancer Day October 4th

By | October 4th, 2017|

We wish to share the news that Congressman Darrell Issa, from the great state of [...]

Please welcome Kiwana Thomas Gayden to the IBC Network Foundation board

By | October 3rd, 2017|

Kiwana Thomas Gayden Kiwana Thomas Gayden has degrees in chemistry, working 16 years in chemical laboratories.  [...]

The Perception of Awareness

By | September 26th, 2017|

A facebook post so raw and real, we had to share.  Thank you Stephanie.    [...]

A Man Diagnosed With Inflammatory Breast Cancer

By | September 6th, 2017|

A Man Diagnosed With IBC Rod using his story to give education and hope [...]

WEGO Heath Awards and the IBC community

By | August 21st, 2017|

We are so excited to have some names from the IBC community be nominated for [...]

The New Normal

By | August 14th, 2017|

People have mentioned I have been awfully quiet lately. I suppose that’s because sometimes I [...]

I’ll keep this short

By | August 9th, 2017|

When I first see you or meet you for the first time, please don't tell [...]

Announcing the Inflammatory Breast Cancer Ribbon!

By | May 31st, 2017|

Drum roll please......I know you're all wishing to know about the IBC #ribbon. Announcing [...]

Hunt for Hope Ohio 2017

By | April 28th, 2017|

The parents and sibling and spouses of Lori Gill Grennan.   April 28, [...]

Time for an inflammatory breast cancer ribbon!

By | April 2nd, 2017|

Update May 31, 2017! The votes are in!  See this link for details!  The IBC [...]

One in a Million

By | April 2nd, 2017|

We are on the brink of a huge milestone. Read the following or view our [...]

If You Read This After I’m Gone

By | March 27th, 2017|

It was just supposed to be a mammogram. A few weeks earlier I had gone [...]

Kate Strosser

By | March 21st, 2017|

Kate, in a light moment. It is with sorrow we announce the passing [...]

Privacy Policy

By | February 25th, 2017|

The IBC Network Foundation strives to take reasonable measures to protect your information, this Policy [...]

Who do you love?

By | February 1st, 2017|

Please join us for an Instagram challenge by posting a picture of someone you love [...]

SABCS 2016 Feeback from Core Volunteers

By | January 15th, 2017|

In December 2016,  we were excited to be able to attend the 39th annual SABCS [...]

January 2017 Newsletter

By | January 15th, 2017|

Please read and share our January 2017 Newsletter. Thank you for supporting the IBC Network [...]

2017 Meet ups!

By | January 9th, 2017|

Rare?  We don’t think so.  We are real women living with inflammatory breast cancer.  Please [...]

IBC Skin Metastases Project

By | December 13th, 2016|

Our purpose is to fund research.  We met Ria, and her project in Dr. Kenneth [...]

One page overview of inflammatory breast cancer care

By | December 11th, 2016|

We just returned from a great SABCS 2016 conference. In San Antonio, we were honored [...]

San Antonio Breast Cancer Symposium 2016

By | December 1st, 2016|

San Antonio Breast Cancer Symposium 2016 This Symposium is designed to provide state-of-the-art [...]

The 10th Anniversary Conference: The Future of Inflammatory Breast Cancer.

By | November 30th, 2016|

The 10th Anniversary Conference: The Future of Inflammatory Breast Cancer. The 10th Anniversary [...]

Alligator’s Hunt For Hope Adventure!

By | November 24th, 2016|

Update!  The Hunt was today, 02/26/2017 and due to your kindness we raised over $100,000.00 [...]

October might be over, but we are still hard at work!

By | November 7th, 2016|

November 1, 2016 Dear Friends, We know why we are on this mission. We want [...]

Bo’s IBC Story

By | October 18th, 2016|

We hear all the time, "Why is IBC not more well known?"  IBC is viewed [...]

Salute to Hope

By | October 4th, 2016|

An IBC Benefit Concert in Memory of Maria Tilly Meyers Date: Sunday, October 23, 2016 [...]

The Stage IV Cancer Roller Coaster

By | September 18th, 2016|

Thank you to The Huffington Post for sharing our article ,The Stage IV Cancer Roller [...]

“Testimony of my Right Breast”

By | September 17th, 2016|

Loretta Walker is a music teacher at Reagan Elementary School, but she is also a [...]

Our first newsletter!

By | September 12th, 2016|

We have mailed out our first newsletter. We wanted to share with you some stories [...]


By | September 10th, 2016|

What is Pinktober? Love it or hate it, it is coming. Pinktober Race [...]

The Metastatic Breast Cancer Project

By | September 8th, 2016|

The Metastatic Breast Cancer Project (MBCproject.org) is a nationwide study to empower patients to accelerate [...]


By | August 14th, 2016|

It was one of those moments.  I was standing at an information booth on IBC.  [...]

“Let’s Raise a Racket!”

By | August 14th, 2016|

Pecan Grove Plantation Tennis Club is hosting a tournament to benefit the IBC Network Foundation. [...]

Update: Dr. Naoto Ueno and the statin project 

By | August 5th, 2016|

Dr. Naoto Ueno This project seeked to develop preclinical evidence about the effectiveness [...]

Update: Dr. Bisrat Debeb and brain metastasis project

By | August 5th, 2016|

Dr. Bisrat Debeb Update: Dr. Bisrat Debeb and brain metastasis project This project [...]

Update: Dr. Massimo Cristofanilli and the blood biopsy research

By | August 5th, 2016|

Dr. Massimo Cristofanilli Some of this research was presented in a poster at [...]

Update: Dr. Balko’s amplification of the JAK2 gene research

By | August 5th, 2016|

Justin Balko's project in December 2014 Justin Balko Update: Dr Balko published the [...]

31 Days of October, support for virtual event

By | August 5th, 2016|

The 31 Days of October event will be here before you know it!  We are [...]

The IBC Network Foundation Italy – CONOSCERE PER CURARE

By | July 30th, 2016|

July 8-10, 2016 was the date of the 5th International Consortium Meeting for Inflammatory Breast [...]

Deep Thoughts from Infusion Chair

By | July 13th, 2016|

An IBC sister shares a thought with us and it was too powerful not to [...]

New Research at Dana Farber Cancer Institute under the direction of Dr. Beth Overmeyor

By | July 13th, 2016|

Our first clinical trial funding at Dana Farber for inflammatory breast cancer. from Lt [...]

Research and Skin Metastases

By | July 12th, 2016|

Our mission is to fund research.  In February of 2016, a young research in Dr. [...]

Christin’s story

By | July 12th, 2016|

Hi there, I’m Christin! I’m honored to write a guest post for the IBC Network [...]

31 Days of October

By | June 27th, 2016|

Update! Due to popular demand, this will be an annual event!  Join us!  The IBC [...]

Dr. Google – Part 2

By | June 18th, 2016|

Correction was made, but there is a new concern: Censorship by Facebook. Wow! [...]

Update! “Axl Project” under Xiaoping Wang, Ph.D,

By | June 11th, 2016|

An Update! We funded on April 6, 2015 a special project. The links at the [...]

Dr. Google can save lives, but also can get it wrong.

By | June 3rd, 2016|

Some poor information regarding Inflammatory Breast Cancer. Please see update June 18, 2016 [...]

Inflammatory Breast Cancer and Social Security

By | May 27th, 2016|

Inflammatory breast cancer patients are covered by Social Security benefits to help manage the financial [...]

The MBC Project

By | May 22nd, 2016|

The IBC Network Foundation honored to be a partner with the Metastatic Breast Cancer Project. The [...]

The person I can never thank

By | May 18th, 2016|

I feel like I owe my life to an ordinary woman I never met. She [...]

The Metastatic Breast Cancer Project

By | May 17th, 2016|

Because we are all in this together. If you have metastatic breast cancer, join a [...]

I Get To Have Another Another Birthday!

By | May 6th, 2016|

I have shared many times, eight actually about my joy over getting to have a [...]


By | April 27th, 2016|

I watched Karen as she reached into her handbag and pulled out a deep red [...]

Register For The 5th International IBC Conference

By | March 10th, 2016|

The website for the 5th International Inflammatory Breast Cancer Conference is now available, and registration [...]

BOOK REVIEW: Being Mortal – Medicine and What Matters in the End

By | February 20th, 2016|

Being Mortal; Medicine and What Matters in the EndAtul Gawande, M.D. Granted, none [...]

Open letter to our Hunt for Hope Ohio supporters

By | February 20th, 2016|

February, 2016 Dear Friends, We know why we "hunt". We want to save lives.  Inspired [...]

Bo’s open letter to Vice President Joe Biden

By | January 20th, 2016|

Bo, age 29 and currently fighting triple negative inflammatory breast cancer. Barbara’s letter [...]

Julie’s open letter to Vice President Joe Biden

By | January 20th, 2016|

Barbara's letter started others sharing.  Share your story today to Vice President Joe Biden’s US [...]

Terry’s open letter to Vice President Joe Biden

By | January 20th, 2016|

Barbara wants so badly for Inflammatory Breast Cancer (IBC) and metastatic cancer to be solved. [...]

Barbara’s Open Letter To Vice President Joe Biden

By | January 20th, 2016|

Barbara wants so badly for Inflammatory Breast Cancer (IBC) and metastatic cancer to be solved. [...]

2016 Meet ups!

By | January 3rd, 2016|

2016 IBC Meet Ups!     Rare?  We don't think so.  We are [...]

Book Review – Proof of Heaven

By | December 30th, 2015|

We love to share book reviews from our sisters. Marilyn found this book to be surprising [...]

1 Step Forward… 2 Steps Back

By | November 25th, 2015|

Cindy Kearney, author, "1 step forward 2 steps back" 1 STEP FORWARD - [...]

IBC Facts 2015

By | October 29th, 2015|

#IBCFacts Phew! Pinktober is almost over – What a busy month here at [...]

Cake And A Cuppa Event, A British Style Fundraiser

By | October 28th, 2015|

Jan and family getting ready for UK Cake and Cuppa Event. In the [...]

CODA for OCTOBER (Pinktober)

By | October 22nd, 2015|

CODA for OCTOBER (pinktober)by Kate Strosser One day I woke up sick and [...]

It’s a Marathon

By | August 30th, 2015|

Stage 4 cancer. Hope lives, even as we run the marathon.  While metastatic breast cancer [...]

50 Quilts in 50 States for Inflammatory Breast Cancer!

By | August 6th, 2015|

Sheryl's post that was our inspiration! Inspired by my sweet friend Sheryl Mesloh. [...]

Wish Granted. Hope Lives.

By | July 20th, 2015|

WHAT: an evening granting the wish of Ashleigh Range benefiting the IBC Network Foundation. WHEN: Thursday, August [...]

Grassroots Philanthropies & How They Matter To Major Institutions

By | July 2nd, 2015|

We hope you pick up the summer issue of Momentum magazine. This is a publication [...]

My Life Continued…

By | June 22nd, 2015|

We wanted to share this message from a IBC sister posted as encouragement in a [...]

Choreo For A Cure

By | June 5th, 2015|

Two dance studios in neighboring towns have come together, offering performance and leadership opportunities at [...]

Tastes of Hope Cookbook

By | May 6th, 2015|

  Shopping for a Mother's day gift? Summer wedding gift?  Christmas or any special occasion [...]

It’s Not Rare, We Are Real.

By | April 22nd, 2015|

Inflammatory breast cancer is labeled as rare. The word "rare" somehow removes the human from [...]

Rose’s Story

By | March 22nd, 2015|

Rose Five years ago today I was in the hospital, waiting for them [...]

2015 IBC Meet Ups!

By | February 1st, 2015|

2015 IBC Meet Ups! Rare?  We don't think so.  We are real women [...]

Yellow Rose Boot Scoot!

By | January 13th, 2015|

Yellow Rose Boot Scoot, dinner and dance to be held in Brenham, Texas! March [...]

Hello and Happy New Year!

By | January 6th, 2015|

Please forgive our delay in wishing you a Happy New Year!   We have been especially [...]

Happy Thanksgiving 2014

By | November 26th, 2014|

Happy Thanksgiving! The IBC Network Foundation wishes to extend a sincere thank you on this [...]

A Big Day for Our Foundation!

By | November 11th, 2014|

Suzanne Mader, of the Karen Oldman Karen Oldham Foundation, Terry Lynn Arnold, The IBC Network, [...]

An open letter to Joan Lunden

By | September 24th, 2014|

This is an open letter from one of our friends, living with IBC. She also [...]

Debra Duncan and Friends

By | September 16th, 2014|

Debra Duncan, Terry Arnold and Staci Today we were asked to be guests [...]

Dealing with Death My Way

By | September 16th, 2014|

While my children are adults, I have two granddaughters under the age of four.  I [...]

Fall funding for 2014

By | September 13th, 2014|

The mission of the IBC Network Foundation is to fund research.  We are a grass [...]

Bone-only Metastasis in IBC and non-IBC Patients

By | September 12th, 2014|

An interesting article is included below regarding bone-only metastasis in inflammatory and non-inflammatory breast cancer patients. The Clinical Breast [...]

Moms & Daughters

By | July 23rd, 2014|

I will never forget the feeling. It was the tiniest mark on her forehead. I [...]

Women who inspire, please meet Sheryl… and rare, we don’t think so…

By | July 12th, 2014|

Please read a message and view the picture that was shared with us today. This [...]

United Kingdom IBC Charity

By | July 9th, 2014|

There are a series of articles that needs to be shared on how our charity [...]

Roswell Park Led Team Identifies Mechanism of Chemotherapy Resistance in Inflammatory Breast Cancer

By | July 7th, 2014|

Specific cancer stem cells need to be treated in a different manner than the whole [...]

Help! I Am Stuck!

By | June 28th, 2014|

Please read a guest post by Kate Strosser.  HELP! I’M STUCK…………….inside my own head! This [...]

International Conference in Belgium

By | June 24th, 2014|

The 4th International Inflammatory Breast Cancer Conference was held in May of 2014 in Belgium.  [...]

Sonic & Research

By | June 10th, 2014|

Necessity is the mother of all inventions. The need was clear. Research was needed. It [...]

Alligator’s Hunt for Hope Adventure!

By | June 2nd, 2014|

What is the Alligator’s Hunt for Hope Adventure? The Hunt for Hope is an adventurous [...]

Little Pink Houses

By | May 20th, 2014|

Jeanine Patten-Coble, the President of Little Pink Houses. We wanted to share something [...]

Load More Posts