The IBC Network Foundation was formed out of the efforts of Terry Arnold, an IBC survivor to educate everyone she could persuade to listen to her about IBC. As naturally as walking along a path, each step lead her to the conclusion that we could do more for IBC. We need a very proactive foundation that will fund research and share education.
Foundations are run by a board of directors and the same is true with this charity. However this board is led by someone who was diagnosed with IBC, so your feedback, opinions and wishes are very important to us, and we will do all we can to have as close a relationship with our IBC community as possible. All board members are volunteers and are not paid or gifted for their service. We are a 501c3 and our EIN number is 38-3850833
Current Board Members
Past Board Members
Kiwana Thomas Gayden
The world is a little dimmer today. It is great regret that we share the news of the passing of Kiwana Thomas Gayden. She passed in the early morning hours of July 12, 2018 with her husband Lorenzo at her side.
In January 2016, she was diagnosed with stage IIIB triple negative inflammatory breast cancer. She underwent six months of chemotherapy, a double mastectomy and 6.5 weeks of radiation. Having completed treatment in October 2016, she was considered NED (no evidence of disease) at that time. Kiwana became passionate about IBC awareness and education after her diagnosis and was a dynamic and much loved board member for The IBC Network Foundation.