EDUCATION + RESEARCH + SUPPORT
No Lump… STILL Cancer
Over $1.8 million donated to inflammatory breast cancer research by The IBC Network Foundation.
We also attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time.
However, we are intensely focused on funding high quality research, because we feel research matters.
What is IBC?
Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.
This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.
OUR MISSION:
- To fund research regarding Inflammatory Breast Cancer.
- To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.
Symptoms, Facts & Statistics
Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.
Treatment Centers
Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.
IBC LEARNING ACADEMY
The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying.
TALK IBC PODCAST
The Talk IBC Podcast is where we will discuss things related to inflammatory breast cancer, from patient’s personal stories to the latest in research. A new episode will be released every two weeks as Terry Arnold interviews new guests.
Walking on Quicksand Magazine
Walking on Quicksand is an online magazine that shows that life persists post-diagnosis. This is a place to showcase the fullness of ourselves, beyond the label of a person who lived with or during the time they lived with cancer. We are now accepting article submissions.
The mission of the IBC Network Foundation is dedicated specifically to fund medical research for inflammatory breast cancer.
The following graphic reflects why our mission is so needed.
This shows breast cancer grants over the last 20 years. *
ARTICLES
My excitement over IBC Connect!
There’s an important meeting happening this November called IBC Connect, hosted by the Morgan Welch Inflammatory Breast Cancer Clinic at MD Anderson. As someone who regularly attends medical conferences—especially those focused on inflammatory breast cancer (IBC)—I...
Words Matter: Finding Courage in Grief
Simple phrases like “I’m sorry” and “I love you” can hold more weight than we realize. I was scrolling through Facebook late one night when I saw the words: RIP. Just three letters. Dropped into the deep pool of my grief. I had lost another woman I’d been working with...
Reflections on Inflammingo: A Story That Stays With You
When the final credits rolled, I sat there stunned. I had been mentally preparing myself for weeks to watch the documentary Inflammingo. I desperately didn’t want to be disappointed. After all, I’ve spent eighteen years talking about this disease. And now, on a large...
